DenseBreast-info.org Updates Patient Educational Materials

Working with a patient advocacy group, DenseBreast-info.org has completed a health literacy update of patient educational materials on the website to ensure the content is understandable and actionable. The project included the launch of a Patient Advisory Group whose input reinforced the need for “simple” language.

“Low health literacy contributes to disparities in cancer care. Mammogram results letters can be difficult to understand and unclear. Lack of understanding can impact decisions and, ultimately, outcomes,” said JoAnn Pushkin, Executive Director, DenseBreast-info. “As a resource women may turn to on the topic, we worked to balance information, delivery, and suggested action. The sweet spot is medically sourced information in simple language, presented in an easy-to-read format.”

Word selection, images, and an easy-to-use format help readers understand and act on the materials. These changes will help women make decisions about their breast health.

According to Patti Beyer, a density inform advocate, and Patient Advisory Group member, “Accurate and understandable information is important for patients, especially as women may be hesitant to say they don’t understand a term or recommendation.”

“Density inform letters raise awareness about the implications of dense breast tissue, but they often are unclear about what the woman should do with the information. Health providers may also lack clarity about the risks of dense breasts and the benefits and considerations for additional screening beyond mammography.  Women must be able to find clear information to guide their decisions.  We are helping them do that.” said Wendie Berg, MD, PhD, Professor of Radiology, University of Pittsburgh School of Medicine, Magee-Womens Hospital, Department of Radiology and Chief Scientific Advisor, DenseBreast-info.org.